Karman Kahambwe was just a teenager when he was diagnosed with a rare cancer so unusual it’s typically seen in elderly Italian men — and the isolation that followed was nearly as painful as the disease itself. His story, and those of others like him, reveal why connection and collaboration are urgently needed in rare cancer research. From a mother fundraising after her daughter’s diagnosis to scientists sharing breakthroughs across labs, a powerful community is forming to ensure no one faces rare cancer alone.
Read the story about TRACER’s work on the National Organization for Rare Disorders website: https://rarediseases.org/guest-blog-fred-hutch/